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Relax Already! It's a Massage, Not a Medical Procedure Jun 23, 2024

For those of us living with chronic illness, self-care can be a double-edged sword. Take a massage, for example. What’s supposed to be a relaxing experience can often feel like just another medical procedure. If you’ve ever found yourself on a massage table, tense and unable to relax,...

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Inside Princess Kate's Chronic Illness: Lessons We Can All Learn Jun 16, 2024

If you have any kind of chronic illness or have had a massive health even in your life, you can probably relate to Catherine (Kate) Middleton, Princess of Wales. I've intentionally avoided the media buzz around her situation, but what I do know has been gnawing at me for months. Frankly, the way...

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I Was Sent To The School NUN Because I Had Chronic Illness Jun 09, 2024

When I started high school, I went to a Catholic all-girls school. The school was dutifully briefed on my medical history, including the fact that I’d already had three open-heart surgeries and lived with congenital heart disease. They knew I was, in some ways, fragile and needed extra...

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How Rude! The Inconvenience of Chronic Illness! May 30, 2024

Living with a chronic illness can sometimes feel like a full-time job. Even when things are stable, there are routine check-ups, procedures, and the constant balancing act to maintain our health. Today, I’m sharing my experience with one such routine inconvenience: a precautionary...

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What 5 Open Heart Surgeries Taught Me About Exercise May 26, 2024

Living with a chronic illness has its fair share of challenges, and exercise always seem to be at the top of my list of challenges. For me, managing complex congenital heart disease has meant undergoing five open heart surgeries. Through these experiences, I’ve had to learn how to...

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Why I travelled 7,000km for healthcare - How Far Would You Go? May 20, 2024

Traveling for medical care can be a significant part of managing chronic illness. While the focus is often on treatment and recovery, the logistics of travel can add another layer of complexity to your healthcare journey. Luckily, each state and territory in Australia offers a Patient Assisted...

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Lonely No More - How to Find Your Tribe May 12, 2024

Living with a chronic illness can often feel like a lonely journey. The day-to-day challenges, the emotional rollercoaster, and the constant adjustments can leave you feeling isolated and misunderstood. But there is one sure fire way to cure the loneliness, and that’s to find your tribe.

...

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Why Routines Rule – When You Have Chronic Illness Apr 29, 2024

Living with a chronic illness can often feel like navigating through a stormy sea. The unpredictability of symptoms, the constant need for medical attention, and the emotional rollercoaster can leave you feeling overwhelmed and exhausted. However, amidst this chaos, there is one powerful tool...

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Stop Googling Your Symptoms - and use this health hack instead! Apr 22, 2024

Tired of endlessly Googling your symptoms and feeling more confused than ever? Say goodbye to the uncertainty and frustration, because I’ve got the ultimate health hack that's about to change the game!

Say hello to the HealthDirect Symptom Checker - your new best friend in navigating the...

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Who Am I Even? The Chronic Illness Identity Crisis Apr 15, 2024

Living with chronic illness is a journey of constant adaptation and evolution, and nowhere is this more evident than for your personal identity.

Identity is not a fixed construct but rather a fluid and dynamic concept that continues to evolve over time, shaped by our experiences, relationships,...

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To Tell or Not to Tell Your Boss Mar 25, 2024

Living with a chronic illness often leads to difficult decisions. One common dilemma faced by those of us with chronic conditions is whether or not to disclose their health status to their employer. While sharing this information with your employer can have both positive and negative...

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Medical Consent: When NO doesn’t mean no Mar 18, 2024

Trigger Warning:

Before proceeding, please be aware that this blog contains discussions of medical trauma, including experiences of feeling powerless in medical settings. These topics may be triggering for some readers. If you are currently struggling with similar issues, we encourage you to...

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